Sunday, 21 February 2010

40 ~ The one where Hayley updated

Call it a clan, call it a network, call it a tribe, call it a family. Whatever you call it, whoever you are, you need one.
~ Jane Howard

Hi all.

Merry Christmas, Happy New Year and all that! It's been a while but I thought I'd update to let you know of recent Hospital appointments. And to announce that I have been in remission for 18 months today. Woah!

Anyway...I had my last check up in January (the 12th), it went fine and my next appointment is on March the...18th I think. My consultant always says how he's pleased with how everything looks. I don't know when my appointments will become further apart, hopefully soon though!

I mentioned in my last blog how I was going to my GP so I could be referred to the Hospital for investigations in to why I get (really horrible) acid reflux. I thought it was related to the radiotherapy because that's when it started, but apparently it's, my original appointment was just before Christmas, but I had a horrible cold/flu thing so I had to rearrange. THEN I completely forgot about the appointment and didn't realise until AFTER I was supposed to go, so I had to go back to my GP and get referred again lol.

My appointment was on Wednesday (17th), at a Hospital I've never been to before. It was really nice there. The Doctor was nice too.

We had the whole "Wow, only 18 when you were diagnosed! I've never heard of that before!" (pretty much everyone I tell says the same thing lol), he asked if I smoke (no), if I drink alcohol (no) and then he laughed and jokingly said "I suppose you're going to tell me you're a vegetarian now" and so I said "Well, I actually am" and his face was funny. He was like "Oh...that will teach me to open my mouth!" Haha.

He asked me to explain to him how long I've had reflux and all that. He asked a lot of questions (which is a good thing) and then he examined my mouth, eyes (?), neck, chest, stomach. etc etc...he was really thorough which is a good thing. It felt like we were in there for ages! lol.
I forgot to mention having had a PEG and when he lifted up my top, he put his finger right on it and was like "Oh! There's your PEG scar!" lol. I forgot to tell him that it still hurts sometimes. I also forgot (I forget a to tell him how I feel sick a lot (if I don't take the reflux medication) but I guess I'll just tell him next time.

After examining me he took me back to the desk (where my Mum was), apparently he wrote on his paper that I'm healthy. Wohoo! That's after weighing me I thought maybe the reflux could be weight related but he said he doesn't think so. I was hoping he'd tell me to get my act together and lose some weight, but he didn't. He also said "I thought people who had throat cancer lose weight when they have treatment" and I just told him that I thought so too. I also told him that the reason I put on so much weight was because I ate A LOT because I was told that I would lose my ability to swallow, so I was like 'well, I better stock up then and make the most of it!" haha.

He went on to explain that he think I could have an infection in my stomach. He said that he doesn't think a gastroscopy will be helpful (WOHOO!!!!!!!!!!) so he has referred me for a barium meal. I go for that on the 11th March. That bad news is that I won't be able to take my reflux tablets for 2 weeks. Boooooooooo. It's gonna be a painful couple of weeks! But, hopefully we'll get to the bottom of this so it won't be a problem any longer.

Lastly, my Nan is doing really well still. She had her first check up after finding out she's in remission and everything is fine. Wohoo!!

Right, I'm off. I will keep you updated with how the test goes.

Oh, and apologies for no hair is wet after my shower so I'm not looking that good right now! lol.



  1. 18 months? Blimey! Where did that time go to? So pleased that things are going so well for you.

    If I suffer from acid reflux (as I do sometimes) it helps if I have a little bit of low fat greek yoghurt each day. Maybe because it's alkaline, maybe not, but it may be worth a try for you Hayley, especially as you'll have to be off your tabs for 2 weeks prior to your appointment.

    Good luck with the Barium Meal.

    Great news about your gran too!

    Take care


  2. yay! good news about granny. and you, well it sounds like you're doing well.Good!! apart from this acid reflux thing [must look that up!]. One thing my onc said to me was this: 'better to have some additional weight when you're ill' - and it's true. We can all worry about weight when we are well.

    yay 18 months remission!! woop woop!!! :o)

  3. I'm so happy to hear things are going well for you. You and your family deserve it!

  4. oh my goodness ! your blog is inspirational ! im so happy that your going good !
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    hope you are well xoxo

  5. I know this sounds cheesy but optimism sometimes is the best medicine.

  6. I love your blog lots of useful information. I've added it to my favorite bookmarks and subscribed in a reader.

    All these issues are important, and that's why I just started blogging a while ago and it feels great.

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  7. I know it's disappointing and I know you feel upset about this. But I want you to be calm and keep your faith firm. You can overcome this nightmare. My alternative cancer treatments center will be very happy to help you in case you need help.

  8. So happy to know that you are 4 years in remission now Hayley!!!!! (not that you don't know that yourself, lol)

    Love you, darling Daughter xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx