Thursday, 2 October 2008

32 ~ The one where Hayley had a bit of swelling!

(Horrible picture but I've been sitting here for about 1/2 an hour trying to get a decent one but it wasn't happening. So this will have to do!)

Hi everyone,

Today I had my 6 weekly check up. My appointment was at 9am so we had to leave at 8 because of work traffic. I was falling asleep in the car because I was so tired!

We had to wait a while because there was a meeting going on, I got to see Jean (who I saw quite a lot when I was having radiotherapy, she helped me with the Macmillan stuff!) which was nice. The last time I saw her was in April!! She was amazed at all my hair, everybody is, haha.

I got weighed, I dread this every time I go there - anyway, I went through and I got weighed. Wasn't impressed...but I asked what I was last time and I have lost 7lbs. Which is better than nothing I suppose. I still need to lose a lot of weight, I'll get to that later though!

After waiting longer, I got called in. Mr Pace was in there with the student doctor, Jean, the Dietitian and then the Nurse. When I walked in Mr Pace said "I'm sorry to hear that your hero isn't here today!" Lol. He means Dr Tahir...I wish he was there because I love him...but you should know that because I always talk about him. He should be there next time though. I hope so.

Mr Pace asked if I wanted to look down there while he was looking, I said I wasn't bothered!! But I know that my Mum would want to see so everyone looked by me. He put the spray up my nose (to numb it) and I thought I was going to throw up. It usually tastes horrible but not this bad, I actually thought I was going to puke!! Luckily, I didn't.
Then it (eventually) went numb and he put the camera in there to have a look. His face looked a bit confused/worried so I was staring at it waiting for a reaction and I was really scared! He was just going "hmm" and I was thinking 'Oh God, what's he found?!' lol. Then he came away and said "There's some swelling down there but it might be from straining to use your voice. We'll keep an eye on it." - so that's that! He said to just book an appointment for another 6 weeks time as usual so I guess he's not that concerned...

Guess when my next appointment is? 20th November at 11:40am. Guess what happened at that exact time a year ago?!?! I got diagnosed. How strange is that?!?! I also saw my surgeon who removed my polyp and found my cancer...I don't think she recognised me though. I haven't seen her since she told me I had cancer.

Erm...then we went to see the Dietitian. She just asked me what I eat and said that it sounds fine and that I basically just need to get in to a routine and eat breakfast. She sent me for a blood test to check my iron levels. etc and said that once she'd got the results (should be today or tomorrow) she'll send me some information on vegetarian diets. etc in the post.
We were also talking about me stuffing my face before radiotherapy started (because I thought I wouldn't be able to eat) and the Dietitian laughed and said that I really was one of the very few that was able to eat through the treatment!

While we were in there Adele (my 'cancer nurse') came in and said hi. I haven't seen her for a while either, the last time was when she removed my PEG back in May!!

When she ran in to Mr Pace to get him to fill out a blood test form, she came back in to the waiting room and said that he wants to check my thyroid again as the CT scan I had in August has shown that my thyroid was hit by the radiotherapy too.

So, I went off for my blood test. The woman was VERY quick. Like, I literally went in there and 2 minutes later I was out. She wasn't very chatty either, lol. As we were driving out of the Hospital we noticed her standing out the front having a cigarette so I guess I was the last one before her fag break!

So yes, my appointment went OK. I forgot to mention my painful armpits (again) - I'll just keep checking them for lumps.

I have been very busy lately, last Monday I went away to Bournemouth with the Youth Cancer was GREAT and I made some great new friends. I've been invited back so I think I'm going to go again next Summer so we'll have nicer weather and will be able to swim.

I got back from the Holiday last Friday and on Saturday morning I went to stay at my Auntie's and got back last night. And now I am just in the middle of packing as I'm going to stay with my friend at her University until Sunday! It's great that I'm doing so much but I'm blimmin' knackered. Not used to doing so much, but I guess it's good that I'm getting out and I'm not stuck in as much anymore.

I still get tired easily, by the way! I am sleeping crap too, I have to wait until I am literally nodding off before I try to. The tiredness is getting better though.

My voice has been OK, still has good and bad days. I still get funny looks when I go out and it annoys me a bit, but I guess I would do that too if I was someone else listening to me. I do wish that I could have a voice that didn't stand out but that's life and I'll get over it. I am so grateful that I still have my voice...don't get me wrong!!!!! It got frustrating when everyone was singing karaoke on Holiday and I couldn't. Oh well. Some would say that's a good thing, haha.

My hair is getting longer and longer and it looks stupid...but I'm trying to get it as long as possible (Without it looking too ridiculous!) before I get it cut.

OK. I have gone on enough. I guess I will update soon. Maybe after my next appointment in November, maybe before.

Leave me lots of comments. I'm not getting as many as I used to. Am I boring?



  1. lol! No, you aren't getting boring matey!
    So pleased all went well for you today, I will ring/txt/email (lol, not all three!) you later regarding the "spin-off saga"!
    BIG love always

    DNO and Caroline xx xx

  2. No you're not boring! I'm glad it all went well although I wouldn't fancy a camera down my throat - ice cream as a treat for you lady!!
    vick xx

  3. You're not boring you nutcase! Hehe :) Thanks for the text, I'm glad I stopped by to find you'd updated with the full details! It sounds like they're pleased with how you're doing and not too worried about the swelling. It's bound to be from straining your voice, that must really take it out of you and your throat. But keep going with the speaking! If you ever need any practice then do give me a call lol!!
    Anyway take care and big hugs! Enjoy your trip(s)!

  4. I don't always comment, but I'm always reading!

  5. You're not getting comments, because you're not posting as much you narna! LOL

    I keep coming by to see what your latest update is. Your poor mum, I bet she never sees you these days... too much galavanting round LOL.

    Keep your chin up hun!

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  7. Don't listen to any of them Hayley. It took me three attempts to get to the bottom of your post it was SO BOOOOORING...


    At least your swelling is on the inside! I feel like Elephant Man these days...

    Anyway - when your done gallivanting around and your next in Glossop let me know - its only half an hour away from me so I'll meet up with you for a beer or three..

    See you soon


  8. Hi there!

    Its been ages and ages since you left me a comment too Miss!!

    Glad things are going OK and I do read the blog even though not always got the energy to write anything! Pop over and say hello in an email soon!

    Peggy Peg (LOL!!)

  9. I lost 7 pounds too, but I definitely got in trouble for it! Glad to hear you are doing well!

  10. I'm so glad that everything went well Hayley, and I think your hair is looking quite cute :)
    Guess where I'm going in 16 more days??? Back to Disney World!! I will hug Pooh for you and try to send you a post card. :) Always praying for, and wishing the best for you sweetie.

    Pooh Hugs,

  11. Hi Hayley,
    I am a nurse and a graduate student in Austin, Texas. I have read your entire blog and think it is great, you are so strong and even though you may not think so all the time very brave.
    I had to read some cancer blogs for a class I am in and I could not seem to find one that hit me like yours did. You are amazing!
    I would like to know if you are willing to share with me what writing the blog has done for you? How has it helped you?
    For myself, I am not sure that I could do a blog, but who knows. My email is, I would love to hear about how blogging has helped you. If you like you could just post another blog. I will be reading!

  12. (((((((((((((((HUGSTOYOU))))))))))))))))Hi there,I came acroos your Blog by your Aunt who used to have a Blog in J-land and has a beatifl baby girl.You are very brave by all that you ha to go through.I am glad your went well.Have a nice day.

  13. Love your blog, please keep writing,hope you are doing goodxxx


  15. I am doing well! My dogs attempt to be guard dogs, but as you can see, they get confused really easily! So, a few months (?) ago you posted on OCF about your peg tube scar hurting when you got hungry and I'm just saying that I TOTALLY feel your pain on this! It's insane! haha. My husband calls me Harry Potter because I'm always complaining of my scar hurting. Does yours still bother you or has it gotten better? Take care!!