Monday, 15 September 2008

31 ~ The one where Hayley hadn't updated for a long long time


You don't get a picture of me taken today because I look like crap - I'm not well at the moment and trust me, I'm not a sight you wanna see! So, you get one taken last week or the week before with my baby cousin, who is also going to be my Goddaughter as of next month!
My head looks huge in the picture lol.

Well, I can't even remember the last thing I wrote about. Shall I go in to detail about my appointment I had last month?!

Basically, me and my Mum waited for ages in the waiting room. Mum was REALLY nervous, I was fine because I just KNEW that I was going to be alright!! We went in and Dr Tahir was there, the best oncologist in the world. I was really happy to see him because I hadn't seen him since April. He said that I looked good (aka fat) and he couldn't get over how much hair I had - he kept tugging it lol.
My speech therapist was also there, along with Mr Pace (my consultant), Eve (one of my fave nurses) and a student Doctor.
I had the camera down my throat and I got to look this time - I can't remember what they looked like when there was a tumour down there so I didn't really know if it looked good lol. Everyone was really pleased - Dr Tahir said it looks so good it doesn't even look like I had any radiation. I had to say 'eeeeee' and I could see my right vocal chord moving, my left one moves too but not a lot. Everyone said they looked really smooth and then said everything was all good.
Then we were just chatting and to be honest, I completely forgot the reason we were there - so my Mum asked about my CT scan and Dr Tahir said "Yes, they look clear" and so we asked what we could say and he said "That you are in complete remission" - hell yeah!!!!!
I now go back every 6 weeks. Next appointment is on 2nd October.

My hair is growing, growing, growing. I look like Elvis! It's still curly at the back and black...people keep asking me when I'm going to get it cut. The answer is not yet. I want to wait until it's longer before I get it cut, it's all even and stuff...it's just hard to manage at the moment but apparently it just goes through that stage! I might look stupid but I'm not getting anything cut off because it's taken blimmin ages for it to grow this much lol.

My neck is still quite stiff and I still have a saggy chin, lol. But it's getting better I think...it's definitely worse in the mornings. I put aquous cream on my neck every day still, it's just a habit! I don't know how long it's going to take for my skin to go back to normal colour! I don't think it's really noticeable anymore, maybe to people who haven't seen it before but I'm not bothered.

I'm still really tired, but I think it's getting easier. It's not a drastic change but I can tell that I don't get worn out as easily as I was.

My voice - well it's ok. It's improving and sometimes it still has really rubbish days. But I think it always will. It usually goes when I'm trying to talk on the phone when I'm walking somewhere, or if I'm trying to be louder because someone can hear me. I haven't been to speech therapy for a while because she is away, my next appointment is on the 8th October I think. She seems impressed though and has given me more exercises to do (which I keep forgetting to do...oops) - she said that she wants to work on the confidence side of things more, ahhhhh. It's scary! She said one day she might get me to phone someone (I don't know) while she's watching and listening lol. I don't mind talking face to face to people, it's just the phone I hate because my voice sounds horrid. The other day when I was at my Auntie's the Vicar came over (about the babys Christening) and said I have a sexy voice!! Haha.

On Monday I am going on a Holiday to Bournemouth with the Youth Cancer Trust (www.yct.org.uk) - I'm really looking forward to it. I get to meet one of my online friends (Katie) too which is exciting. If you want to visit Katie's website please go www.freewebs.com/ktlouise85.

Lastly, on Saturday I was meant to be doing the Mouth Cancer Walk but I don't think I'm going to be able to do. I haven't been well for a few days and don't think I'll be feeling up to it on Saturday. It is a shame, but I will do it next year as hopefully I wont be ill.

Ok, that's everything.

Bye!

6 comments:

  1. Fantastic new Hayley! See, I said in your notebook that you'd kicked it's arse! lol

    Hope you're feeling better soon.
    xx

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  2. Hiya! Great to see you have posted again on your site, sorry to hear you aren't to well at the mo, hope you feel better real soon.

    Sending you all our love
    DNO and Caroline and family
    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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  3. It's so nice having the tube gone, it makes life so much easier. I'm not paranoid about pulling it out anymore! Glad to hear you are doing so well!!!!!

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  4. Yay, go Hayley! So glad to hear you're doing great :o) You've come so far! The hair looks fab, you do realise Victoria Beckham has blatantly copied you though?! Though I must say you manage to pull it off far better!!
    Your God-daughter is looking adorable, what a sweetie-pie! I become a God-Mum next month too! Hope you enjoy the day, it'll be so lovely.
    Take care and big big hugs!
    xxx

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  5. Hayley,

    We would like you to visit and consider joining the People Against Childhood Cancer community. We are a network of over 900 parents, friends, family, concerned citizens and childhood cancer organizations (CureSearch, Alex's Lemonade Stand and more) whose sole mission is to present a unified voice to raise awareness of childhood cancer. The website format is unique, you can have friends, post photos and videos, blog, participate in Forum discussions, start or join Groups that interest you, chat live with other members, and promote or learn about fundraisers. It's free, interactive and will continue to evolve.

    While these features are nice, our focus is action to raise awareness of childhood cancer. One initiative is the Petition to Raise Awareness of Childhood Cancer . It has over 16,000 signatures and will be used to hopefully leverage a network TV special solely on childhood cancer or a similar high profile project. Other ideas and action items are presented daily in our ongoing effort to raise awareness.

    Please visit and join us at http://curechildhoodcancer.ning.com.

    PS Love the name of the blog and love even more the t-shirt "Cancer picked the wrong bitch" Haaaa; you rock. Seriously, the PAC2 can use your chutzpa (no clue if I spelled that right!)

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  6. Hope you're doing well

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