Thursday, 1 May 2008

21 ~ The one where Hayley said good riddance to her PEG

'I am, and always will be a survivor
I will conquer anything that dares to cross my path.'
~Merci lujan

Today marks three weeks post treatment! I was expecting the '2 week peak' and I waited and waited and guessed it just wasn't going to happen! I think the last week of the treatment and the week after were the 'worst' and even then, it wasn't that bad at all. My throat felt quite sore but painkillers helped and of course, it didn't stop me eating. I hope that no one thinks I'm rubbing it in lol. I do feel very lucky (I think I deserve some good luck!!) and I am grateful that I haven't had it too bad with the side effects of my treatment.

The skin on my neck is fine, it just looks dirty!! It's not though, lol. It's not sore at all anymore. This is a really bad picture!

My hair is getting longer...if you can call 1/8th of a millimetre long anyway!! I can't wait for it to get long enough so I can actually do something with it.

Voice isn't coming out but we'll get to the reason in a minute!

I got a letter in the post last week saying that I had an appointment on the 15th of May for a check up, camera down my throat. etc - origionally the appointment was at St. Johns Hospital which is where I was diagnosed and I HATE going to. But, it was changed to St. Peter's Hospital because Adele overheard Dr Tahir telling Dr Pace that St. Johns holds really bad memories for me and I dread going there. Aww. I think it's nice that they changed it for me...

My PEG had been causing me some pain over the past couple of days, I presumed it was because I've put on so much weight and it felt my Mum phoned Adele for me and she said to go in and see her and she'd loosen it for me - me and Mum ended up going to the wrong hospital today (long story) but Adele kindly said she'd come over to the Hospital to meet us! We waited for a while and my consulant (Mr Pace Balzan) was there today and he said he'd see me. So I went in to the room and he asked how I was and everything and I asked if I could have my PEG removed (because the ward sister said to ask him as I haven't used it and it's just there for no reason now! By the way, hi Eve if you're reading this!) and he said he'd look down my throat with the camera to see if my throat was still swollen. etc.
So, I have the lovely camera up my nose and down my favourite part of my Hospital visits!! Nah, it's not so bad. I have to get used to it anyway cos it's going to be happening every month for the next year and then every 2 months and so on. He looked down and there and said that there was still some swelling around my vocal chords (hence having no voice still) and that it looked ok and it was alright to have my PEG removed!! Which, I was extremely happy (and a bit nervous) about!!!!!
Mr Pace also went on to say there's no point me going back in 2 weeks on May the 15th so he's changed my appointment to another months time (May 29th) which is great. So, basically today I just had my 15th May appt. 2 weeks early lol.
He said that if there's still some swelling down my throat they may do a biopsy just in case.

After that Adele took me in to another room to look at my PEG, she said that yes, it was tight. So I was right, I am getting fatter! Lol. She double checked if it was okay to remove my PEG, came back and told me that I have two options of removal.
1) Just pulling it out (NO THANK YOU - my Mum accidently pulled my PEG last week and that hurt enough!!)
2) What they call 'cut and push' - which is where they literally cut the PEG tube and push what's inside, inside lol.
I opted for the 2nd choice...I asked if it would hurt and Adele said it might but not as much as the first choice would have lol. So Adele checked that the PEG was still moving freely (which hurt a little) and it was so, she cut it and loads of water came out lol. That's because I flushed it just before I left for the Hospital....then she pushed on my stomach and said that the little bit inside would pass naturally (you catch my drift) and put some dressing on it. The hole looks like a second belly button, I got the whole thing on video. It's funny lol. Now I just have a little hole and all I'm not allowed to do is have a bath 24 hours afterwards so it's all good. I'll probably have a scar there but I'm not bothered.

I don't think there's much else to say, I'm not sure when I will update again. I am going up north to Glossop in Derbyshire for a while, have to be home for the 16th of May because that's when my baby cousin (and God Daughter) is arriving and I HAVE to see her the day she's born. I can not wait!!!!!
I will definitely update after my 29th May appointment to let you know what's happening. You might hear from me before then! I am going to keep this blog running anyway, just updating after Hospital appointments. etc.

I'm off to bed...have to get up early and pack my stuff and pluck my eyebrows (which will take hours tackling these bushes!!) before getting the 12pm train!!



  1. You must be glad to no longer have a tube hanging out of you. Yay for things going well x

  2. Hey Hayley - things sound like they are going swimmingly.

    I am dead jealous you have rid of your PEG, can't wait to see the back of mine - though its still in daily use just now.

    I want to rush things through now and get better really quickly - guess thats not likely though is it. lol

    Have a great time oop North - will be thinking about you - don't live too far from Glossop myself.

    All the best

    Nigel x

  3. Hey Hay, still sending you lots of love in my thoughts mate...

    PS Just went over my head on a number 2 this week as it was getting too long! LOL!

    BIG LOVE always xxxxxxxxxxxxx

  4. Hi Hayley it's Jay just wanting to let you know we are here and always thinking of you.


  5. Hi Hayley, hope you are doing good, so glad that things are going good for you sweets, you have been so strong throughout the treatment and now you are on your way to full recovery God willing, Hope you have a fun time... you are always in our have really made your family so very proud of you.
    take good care
    keep smiling, love

  6. You must be so pleased. I'm so glad you're keeping the blog going.
    You go girl. You are such an inspiration.

  7. Fantastic news Hayley. So glad that another step has been taken on your road to recovery. Goodbye PEG, I'm sure you won't be missed!

    Have a lovely break away.

  8. Hey, just popping in to say, hi, can't be bothered to go facebook at the mo. Hope you are feeling well and your family is ok. Hope you have been watching some great movies.

    PS My money raised has gone up a further £30!!!!!!!

    BIG love

  9. Hi Hayley. I visited your blog for my regular update on how well you're kicking ass. Imagine how :-) I was to see that you had put a link to my blog!


    Can you send me an email via my blog please? I would like your address to send something off to you....

    If you don't send me your address, you'll not know what I've made for you! ;) LOL