Monday, 24 March 2008

18 ~ The one where Hayley was over half way there

Each day comes bearing its own gifts. Untie the ribbons. ~Ruth Ann Schabacker


Good news everybody. I found out last Wednesday that the tumour has shrunk even more. Wohoo!! I also had two swollen glands in my neck and they're gone. Dr Tahir said that he is really pleased with how everything is going, so am I!

I've been feeling alright, can you believe this is my 5th week of treatment? 15 treatments to go. When I was waiting for treatment to start I really thought that it was going to drag on, but it really isn't. Let's hope it continues to fly by (I'm sure it will)

Last night I ended up in the Hospital. Nothing major, I just felt generally crappy and not 'right'. And my whole body was aching and I had a headache...plus my stomach was really sore (around my PEG) so my Mum phoned the Hospital and the Doctor said to take me in to check my bloods and everything. I think we got there about 6pm and I had my temperature/blood pressure/heart rate and all that stuff done - it was all okay. The Doctor came to see me and took my blood and then a nurse took a swab of my PEG site. I think we waited until about 9pm and the Doc came back and said to go home and just take paracetamol as my bloods had come back fine. I don't know if my PEG is infected again because they didn't say anything but I'll ask tomorrow when I go for treatment. I still have a headache and my whole body is still aching, I don't know why...maybe I've got the flu coming or something??

My neck is starting to change colour now, I didn't notice it for a while but people kept commenting on it when they saw me. I took a picture to show you but you can't really see it as much as you could if I was standing in front of you...it's not sore to touch or anything. I've been putting plenty of aqueous cream on it twice a day as I don't want it to get bad...I don't know how bad it will get as everyone is different.
There's more redness on my shoulder but I've got an awkward top on today so next time I'll take a picture where you can see the whole area.

I don't think I have anything else to say, last Thursday marked 4 months since I was diagnosed. It seems like it was years ago though, so much has happened since then!

I have two treatments tomorrow, 9am and then 3pm. It's because I didn't have any today due to the Bank Holiday.

Anyway, thanks for reading.

Hayley

13 comments:

  1. Hello Brave Girlie,only 15 more to go and you are doing really well.

    Only 4 days this week and a double dose,if you feel up to it,go for some shopping therapy theres lots of nice shops very near to the hospital!!.I was so glad that we finally made contact.Keep kicking that arse girl.
    val

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  2. Hi Hayley - my halfway stage is tomorrow!!

    I'm in hospital overnight tomorrow too for my 2nd dose of Cisplatin - NOT looking forward to that.

    My redness hasn't really flared up yet and I'm only using the aqueous cream once a day - its starting to feel tight though so I might start to up the cream usage. lol

    Im still suffering with this cold too.

    Its good to hear about the tumour shrinkage - I asked the radiographer today about mine (no rest for me today :-() but they said I would need to talk to the dpctors about it.

    Keep smiling - not long now!

    Nigel

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  3. Hi Hayley!
    Good to read another update!
    Sorry to hear about the PEG again! Let's hope its not infected still/again! About time it behaved itself as they normally settle down given time. Hope all the aches and pains will settle quickly and you will soon feel loads better.
    Hope the neck redness is not going to be sore and everything goes OK for the 2 treatments tomo!

    Take care and speak again soon

    PeggyPeg!

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  4. Hi Hayley!
    Good to read another update!
    Sorry to hear about the PEG again! Let's hope its not infected still/again! About time it behaved itself as they normally settle down given time. Hope all the aches and pains will settle quickly and you will soon feel loads better.
    Hope the neck redness is not going to be sore and everything goes OK for the 2 treatments tomo!

    Take care and speak again soon

    PeggyPeg!

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  5. Hi Hayley,

    I'm Nigel's girlfriend and obviously he told me about your blog. Way to go girl, I am liking your take on it all. You sound like just the right person to kick arse. We are all trying to stay positive and focused but it did Nigel good to see how strong you are being when you are so much younger than him.
    Keep it up, we are thinking of you and sending arse kicking thoughts in your direction to add to your own!! Big hugs
    Sarah xx :)

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  6. Hi Hayley,

    I always enjoy reading the quotes and sayings you place on your blog. Over here in the States we have some pretty goofy sayings. One of them is:

    When the going gets tough, the tough get going.

    I'm not sure where the tough are to get going to, but you seem like a nice, tough girl - and the going certainly has seemed to get a little tough lately, so I hope you have some idea about the direction.

    Maybe the tough go to those nice shops that commentor Val says are very near the hospital?

    Speaking of goofy, I suppose I am a little bit that way myself tonight. Sorry. Just wanted to let you know I am thinking of you.

    -darcy

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  7. Hi Hayley,

    It's Jason. Just want to check in and let you know that I am always thinking of you. I think you are the bravest person of your age I have ever. I have no doubt, none at all, in all my big bones that you with beat this. You still inspre me to be positive when my days get dark, I am just having to wait to hear about surgery and they are testing me to high heaven to make sure because of how dangerous the surgery is - it's that waiting thing. I think it has been a month since my diagnosis. But you give me strength - you have from the beginning - everyday I spend some time alone and quiet sending positive stuff to you and all the others that need it. It sounds weird - but I don't care - I want to do it.

    You seem to have lots of friends around you and I know from personal experience how wonderful your family are. I am gonna get that uncle of yours out for a drink soon.

    Anyway. Take care. Thank you for helping me through my time by just being a great example of bravery and positivity. If there is anything I can do you know how to get hold of me.

    Ange and the boys send their love too.

    JayX

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  8. Look how loved you are hayley bayley, always such lovely comments on here :o) Awwww. Bless ya!
    Anyway just wanted to say YIPPEEE you're halfway there! Keep putting cream on your neck, and finding time to relax and have fun, ever so important, and hopefully I'll see you shortly!
    Love you lots
    xxx

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  9. Hi
    Someone gave me a link to your blog from the macmillan website as i was looking for someone similar age to me to talk to, i dont personaly have cancer but im supporting my 17 year old boyfriend through it for the 2nd time in 18 months, would be good to talk if you willing to, no probs if not. hope all is well, stay stong. love katy xxx

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  10. Just realised i left a comment but no contact details lol, my email is kayteeeee@hotmail.com

    x

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  11. Hi Hayley - I found your blog via Cheryl's and I thought I'd say hello and tell you how amazing you are! My daughter is nearly 18 and I can't imagine having to cope with what you are going through. You have exactly the right mentality, though. You go, girl :) (hope you don't mind total strangers randomly saying hi....)

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  12. hi hayley its carrie from bramston, u remember me..i saw u the otha day in nettos..n i shudda cum n sed hope ur ok but i neva reli spoke 2 u tht much in skool n i dint want u 2 feel akward..
    ur such a brave gurl u reli r..
    n i hope all goes well and u get thru this coz ur so luvly..
    take care babe
    carrie xx

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  13. Hello Hayley. You must be thrilled to see the last treatment tomorrow. Then onto recovering and getting some normality back into your lives.

    Keep up with your blog because it gives inspiration and hope to fellow cancer sufferers. I know because I am one of them.

    Well done and keep fighting. xxxx

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