Monday, 24 March 2008

18 ~ The one where Hayley was over half way there

Each day comes bearing its own gifts. Untie the ribbons. ~Ruth Ann Schabacker


Good news everybody. I found out last Wednesday that the tumour has shrunk even more. Wohoo!! I also had two swollen glands in my neck and they're gone. Dr Tahir said that he is really pleased with how everything is going, so am I!

I've been feeling alright, can you believe this is my 5th week of treatment? 15 treatments to go. When I was waiting for treatment to start I really thought that it was going to drag on, but it really isn't. Let's hope it continues to fly by (I'm sure it will)

Last night I ended up in the Hospital. Nothing major, I just felt generally crappy and not 'right'. And my whole body was aching and I had a headache...plus my stomach was really sore (around my PEG) so my Mum phoned the Hospital and the Doctor said to take me in to check my bloods and everything. I think we got there about 6pm and I had my temperature/blood pressure/heart rate and all that stuff done - it was all okay. The Doctor came to see me and took my blood and then a nurse took a swab of my PEG site. I think we waited until about 9pm and the Doc came back and said to go home and just take paracetamol as my bloods had come back fine. I don't know if my PEG is infected again because they didn't say anything but I'll ask tomorrow when I go for treatment. I still have a headache and my whole body is still aching, I don't know why...maybe I've got the flu coming or something??

My neck is starting to change colour now, I didn't notice it for a while but people kept commenting on it when they saw me. I took a picture to show you but you can't really see it as much as you could if I was standing in front of you...it's not sore to touch or anything. I've been putting plenty of aqueous cream on it twice a day as I don't want it to get bad...I don't know how bad it will get as everyone is different.
There's more redness on my shoulder but I've got an awkward top on today so next time I'll take a picture where you can see the whole area.

I don't think I have anything else to say, last Thursday marked 4 months since I was diagnosed. It seems like it was years ago though, so much has happened since then!

I have two treatments tomorrow, 9am and then 3pm. It's because I didn't have any today due to the Bank Holiday.

Anyway, thanks for reading.

Hayley

Monday, 17 March 2008

17 ~ The one where Hayley had a lot of thanks to give


Every tomorrow has two handles. We can take hold of it by the handle of anxiety, or by the handle of faith. ~Author Unknown



Firstly, I'll just do an update about me and then I'll talk about what I came here to talk about (the charity day).

Things are going okay, nearly half way through treatment now. Can't believe how fast it's flying by!! I'm feeling okay...I'm not talking about it too much because I'm convinced I'm going to jinx myself.

I've put on weight...lol. Look how fat my face is!! I'm just enjoying eating waaaay too much to care at the moment, haha. Also, I'm on steroids 3 out of 7 days a week and I have a lot of fluids pumped in to me when I have chemo...so let's all pretend that's the real reason why I'm putting on weight and not because I'm a pig.

PEG is infected again. Grr. It was infected before, I took antibiotics and within a day of stopping them it started to look infected again so I'm on more now. Fingers crossed it'll clear up this time!!
Hair wise...it's growing. Slowly but surely!! I didn't think that my eyebrows were affected by the chemo but they've gone quite weird (you have to look close to see what I mean) - it's as though they thinned out and are growing back and...maybe I'll take a picture and show you on my next post. But I haven't had to pluck them since December and I think I'm going to have to soon. I haven't really missed it lol
I would show you a picture of me without a bandana on but I think I look horrible withour hair so you'll have to wait lol. If you really want to see, get a picture of me and open it in microsoft paint or something and erase the hair...I didn't think it would look anything like me but I did it before I lost my hair and sure enough...that's exactly what I look like now!! Lol.

I have a CT scan tomorrow. Wish me luck!!

On Saturday it was the Charity Day...it all went REALLY well. I had a brilliant time, I'm knackered now though!! I didn't actually do much when it came to the planning...infact, I didn't do much of anything but sit there, watch (and eat lol) so all thanks has to go to my Mum, Pete, Terry...erm...everyone else lol....I think if I listed everyone's names here this post would end up 10000 pages long.
THANK YOU to every single person who donated money, gave us auction/raffle prizes and came to the day/night...even though I don't show it often I am really grateful.
I haven't individually named people to thank because I don't want to upset someone and leave them out but you all know who you are.
Without all of those people it wouldn't have been possible to raise so much money. On the night alone we raised about £3000 and we still have ticket money and sponsership money to come!! Amazing, isn't it?
There's more information on the website http://www.kickingyoungcancer.org.uk/ about the day if you're interested!

I have all of the pictures on my facebook account if you want to see them. Just click this link: http://www.facebook.com/photos.php?id=560424464
I think that I'm going to leave this here, this could possibly be the shortest blog I've ever posted! I don't know when I'll update again as I'm pretty rubbish at doing it regularly. I might do it once I get the CT scan results, I don't know when that will be. Possibly Wednesday? I don't know.

Thanks again for all your lovely comments and emails, I say it all the time but I really do love them. They make me smile! Keep leaving me more and I'll love you forever (or email hayleydyer3@googlemail.com)
Hayley

Friday, 7 March 2008

16 ~ The one where Hayley was nearly a third of the way there!!

"The positive thinker sees the invisible, feels the intangible, and achieves the impossible."


There's the t-shirt I was speaking about months ago! I recieved it in the post in December and keep forgetting to actually wear it and take a picture to show you all. So there you go!

Things are going well, 10 treatments down. 25 to go. The past 10 treatments have flown by, everytime I go for treatment it seems to quicker than the day before. Also, I feel more calm as the days go by too.

I'm feeling alright, a bit tired but I've had a busy week. My friends from Manchester came down and stayed from Monday until Thursday. I really miss them and can't wait to be better so I can go up and see them.

My throat feels okay still, I'm still convinced I'm going to jinx myself so I wont chat on about it too much. It feels different, only when I sneeze or yawn though. It doesn't hurt...just feels odd. It's really hard to explain. No noticeable marks on my skin either yet. I've been using cream on my neck twice a day so hopefully it wont get too sore.
I had chemotherapy on Wednesday, it went fine. I felt a little bit sick but it still didn't stop me eating my ice cream, haha. It really knackered me out and on Wednesday night I was a right grump. Thanks Leah and Jess (and Mum) for putting up with me!
My PEG turned out to be infected so I've been on antiobiotics. I stop them tomorrow and it seems to be clearing up well. It doesn't really hurt anymore and half the time I forget it's even there. You can't really see it through my clothes, but that doesn't bother me anyway.

I think I have a CT scan soon. Possibly the 17th. I have the date on a piece of paper in my bag but I'm too lazy to get up and get it lol. It's just to check the progress I guess and also if it's shrunk (pleasepleasepleasepleaseplease) then they might need to make changes to the mask and the positioning of the lasers or whatever.

In December a few of my friends arranged for me, my Mum and youngest Brother, Ryan to have a photoshoot. I had it on the day of getting my PICC line (can't remember the exact date) and the other day I got the pictures through. I really love them and it's hard to believe I once had so much hair. Cheryl (the photographer) did an amazing job, if you'd like to take a look at her work, please go to http://www.feelgoodphotos.com/ - I'll just post two or three pictures on this blog. If you'd like to see them all you can go to my facebook (search for Hayley Dyer) and they're all on there.

Click the pictures to enlarge them.


Lastly, this week I heard some news that a family friend, Jason, has been diagnosed with cancer of the oesophagus (not sure if I spelt that right?) - I was really shocked to hear the news. Even though I have cancer I still never thought someone I knew would ever get it. Jason is brilliant and he's going to kick cancers arse just like me!! He has also set up a blog and I'd like it if you could all go over there and say hi to him, his blog is http://www.beatcancer-jay.blogspot.com/ - thank you.
Also, Jason's friends Dad, Bill Dennis, has got lung cancer and he is responding well to treatment. So, let's all send him some more positive tumour shrinking vibes!!

I'll leave this post here, leave me lots of comments. I really, really, really, really, really do love reading them. If you don't feel comfortable leaving them on here (because other people can read them. etc) then you can always email me at hayleydyer3@googlemail.co.uk - Val, I asked you on my last blog to email me but stupidly left the wrong email address lol. So, if you are reading this then please email at the above address. It's the right one this time!!

Anyway, night night.


Hayley