Tuesday, 27 November 2007

2 ~ The one where Hayley asked questions

Cancer is a word, not a sentence. ~John Diamond


Hi guys,


So today was my appointment at the Hospital to ask questions and stuff! My Mum and Uncle Pete came with me and I'm glad they did because for some reason I always zone out when I'm being told something, lol. I just sit there and hear what they're saying but it just goes in one ear and out the other! It used to happen when I was at School and I was being told something important...I'd walk out of the room and think "What the hell did they just tell me?"



Luckily, I had my Mum and Pete there to listen to everything he said and Pete even wrote some stuff down which I'm very grateful for. Basically, now all we have to do is wait to hear from Charring Cross Hospital in London - I don't even know if they're prepared to do the laser surgery yet but I hope they do do it. I was told to ring St Johns on Thursday or Friday if I hadn't heard from them yet.


I had a few questions to ask, what the next step was (which is explained above), I also asked how long I will be in Hospital for when I do have the growth removed. He said about 48 hours depending on how my swallowing is and how sore my throat is. It'll be scary staying in Hospital as I've never been in overnight before (apart from when I was born...), but I'm sure that I will be fine.



I also asked whether chemotherapy or radiotherapy will put my fertility at risk. He said that with radiotherapy it wont and he doesn't know about chemotherapy so I'll have to ask the oncologist.


My Mum and Pete mentioned that my breathing is getting bad and he said that he was going to look down my throat with the evil camera. I declined haha. It has got a lot better than what it was


but I do wish that I let him take a look just in case it's very close to closing off my airway completely, hahaha. The consultant/surgeon said that if it does get worse then to ring the Hospital and they will bring me in and take a look at my throat and remove part of the growth if needs be.

I was told that my voice will never be how it used to be, which I expected anyway. I'm not really upset about it because I am grateful to have any voice. I'm grateful to even be whispering right now. It will be a bit annoying when people always ask what's wrong with my voice but I'm kind of used to it and there are much worse things to worry about! My speech therapist apparently told Adele (my cancer nurse) that if I want to see her and talk about my voice then to give her a ring. I'm glad that she said that because it's nice to know I can talk to someone who knows what's going on and has seen people with problems before. If that makes sense...Adele seems really lovely too and said if I need anything to give her a call. These people are so nice and supportive! There's also a lovely nurse called Linda who I have seen two of three times at the Hospital. I gave her the address for this blog so if you're reading this Linda, hi!!

I have been getting frustrated that my Mum is the first to know things (which is no one's fault...it's just that I can't be heard on the phone!) and Adele suggested that everytime someone phones that we put it on speakerphone and I can tell my Mum what to say back to them which is a very good idea! I'm really glad because I was just getting annoyed that I wasn't the first to know about what was happening to ME!



The plan really is to have the tumour removed by laser IF the Hospital does agree to do it. Possibly having radiotherapy afterwards. If the Hospital doesn't do it then I will have radiotherapy at St Johns which the surgeon/consultant said is VERY successful. He sounded SO positive about it which made me feel tonnes better and also my Mum! They don't really want to do too strong a dose of radiotherapy because of the long term effects. So if they do it after the laser they will do it in small doses instead of one big dose. Chemotherapy is still a possibility but not very likely...he doesn't seem to think I will need it but is leaving the option open until we definitely know.

They are not looking at removing my voice box, that will be the very last thing they have to do but they don't seem to think they will.



The cancer is on the left side and when they looked at my MRI scan it showed that the cancer is NOT attatched to any skeletal part which is a GREAT thing. I was soooo happy to hear that.

The consultant/surgeon was SO nice. I really liked him...he was positive the whole time and just made me feel so relaxed and at ease. He kept saying "When you're cured" and that the success rate is good and there's no reason why I can't have a good quality of life afterwards.


Hearing that just made me feel great, I was feeling pretty positive anyway but that made me feel even more positive! It also made my Mum feel better.



Do you like the pictures of me and my Mum? Haha. We just took them on the webcam. We're such geeks but I love it. Here's an explaination of them...the first picture is of us looking scary lol. The second picture is me hiding my chin! The third is me giving my Mum 'the face' when I don't like what she's telling me and the last picture is of me and Mum with a pillow covering our chins!




Anyway, I am going to be in the audience of The Graham Norton Show tomorrow night (it's shown on Thursday, BBC2, 10pm) - I went about a month ago and I loved it so I'm very excited to go again. Alan Carr is one of the guests and I really love him.


Night night.



Love,



Hayley

13 comments:

  1. I'm glad everyone is being nice to you.
    When the cancer is gone are you having a party? Can I come? And can I be in the speech again lmao
    xxxxxxxxx

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  2. Oh yeah, and I love you and Cups. You are such geeks!!

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  3. Im so glad you got such positive answers from the hospital hayley :) I hope they can do the laser treatment and avoid the radiotherapy and the chemo al together. I have heard that the laser treatment is really sucessful too! *hugs* it's looking good *does a little dance* xxxx

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  4. Hayley I am here for you if you ever need to talk! Luv you!

    Ashley and Cierra

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  5. hi hayley

    im a friend of uncle peter..i was there when he heard your sad news..you have a great family supporting you, and you will beat this illness...you are a DYER!!!!keep smiling and when you are feeling better we are sooo going out x x

    love always

    simone x x x

    here if you ever need anything x x

    love Simone x x x

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  6. Hi Hay its you uncle / auntie Pete LOL

    Im right behind you all the way "Kicking Cancers Arse" and dont you believe it, its gonna get the biggest kick of its life! With your size 6's and my size 7's - and our WII boxing skills LOL.

    All joking aside, you are being a super trooper, positive, brave and thinking of otherss too - im really proud of you!

    You know im there whenever and for whatever you need! (I know you know that anyway LOl) You can call me anytime for anything!

    You know you only have to ask if you want me to be with you when you have your treatment - i will make sure im there supporting you all the way, and when your cured we will have a superb weekend in Manchester with no wheezing and tiredness - we might even manage the full 1 hour ice skating - but maybe not i am getting a bit old for that lol. (old my arse - me -too old - never)

    Anyway just wanted to make sure i left you a comment on here (incase you slapped me !!), to let you know i love you very much and think you a very special corageous young lady!

    Heres to the soon coming "all clear" and a rather large piss up in Manchester with Leah and Mosh. And next time i will have one of those multi coloured dummies LOL

    Love Always

    See you soon

    Uncle/Auntie Pete xxxx

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  7. Hi Hayley,

    Another Dyer here lol-your cousin!!

    I'm so glad that your visit to the hospital was reassuring. The only way is up gal !!

    You have such a wonderful and supportive family around you. Auntie Pete???? sounds like such a great guy and your mum- wow what an angel.

    Once you've kicked this to the ground (and trod, squashed and trod some more) It would great if you would like to come and visit the US. It's not fun being the only "alien" for miles haha.

    Hope you hear something from the Surgeon soon and keep smiling that beautiful smile.

    Sending all my love and tons of hugs (via US airmail).

    Shona xoxoxoxox

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  8. Hey Hayley, it looks like you've got some great friends and fam behind you. I'm glad the hospital is being so positive! It's looking good hun.

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  9. Heres to the soon coming "all clear" and a rather large piss up in Manchester with Leah and Mosh. And next time i will have one of those multi coloured dummies LOL

    Haha, I love that idea well bad. I love Auntie Pete
    ps I made an account yesterday, but now I've forgot the password

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  10. I did leave you a comment this morning, but it got chewed up somewhere in the the wibbly wobbley web!

    ..anywho...if anyone can kick cancers arse, IT'S YOU!!!!

    At the end of the treatment I'm gonna get you a big trophy...a pair of kicking cancer boots!!!

    Love you sweetheart, very much

    xxx Mum xxx

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  11. Everyone sounds so nice...great pics! Linda x x

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  12. hey.
    I'm glad that everyone is being nice to you and that i just wanna say hi and let you no that everyone here is thinking about you.
    xxx nicole& matt xxx

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  13. Hiya Hayley,

    You may not no me but im a related to Ryan and Trevor Tilley(sorry if i spelt Trevor wrong, we send all our love and best wishes to you. If you do have msn add me benner678@example.com or if you have piczo leave me a comment, www.xxpinkladyxxkitaxx.piczo.com and im Nikita but everyone calls me Kita i am 9. You look well cute/sweet with you cute dog! Love Nikita/Kita xox oxo

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